Sunday, March 13, 2011


"I just couldn't let my child suffer." That line is used a lot to justify terminating a pregnancy for Down syndrome. Those of us parenting a child with Down syndrome would be quick to dispel the myth of "suffering" when it comes to our kids. 

But, in thinking about the last week, I realized Eon really does suffer, at least in his mind. 

He suffers every time he gets a flick on the hand for plucking the pacifier out of his baby sister's mouth. He suffers everyday around 2:00 when he is laid down for his afternoon nap. He suffers when his mean old mom hands him a cup of milk and he wanted juice instead, or when she makes him get down when he's standing on the dining room table, or when he walks into the bathroom signing "bath" and no one will give him one. If his response is any indication, he suffers every time someone has the audacity to go against his will. 

He's enduring all this suffering, not because he has Down syndrome, but because he's two. And he's really, really good at it.

The dictionary defines "suffer" as: to undergo or feel pain or distress. While most of the above wouldn't qualify as pain, judging from his reaction, there is no small amount of distress. 

We, his parents, learned a few kids ago that causing a two-year-old some distress by not letting him get his way all the time will save him (and us) from more severe distress in the future. So, yeah, Eon's going to suffer. We expect him to grow into a mature, responsible adult, just like we do his siblings.

I wonder about those parents who would choose death over suffering for their children. Who has ever escaped pain or distress in this life? Who's to say that escaping them is desirable or the best outcome? 

Well, besides a two-year-old, of course. ;-)

Wednesday, March 9, 2011

I got my baby back, baby back, baby back!

This poor, neglected blog. Sigh. It's not just the blog, it's facebook, and babycenter, too. I needed to unplug for awhile to devote my attention to real life stuff. I hate when life gets in the way of my socializing!

February was a rough month for Eon. I'm not sure what was going on with him. He started waking up at night, every night, and was just  kind of whiny and demanding. Basically, he acted like a 2yo and he's really good at it! More concerning to me was that he seemed to have gone backwards with communication. He lost most of the signs he was consistently using and almost all of the words he used, too. It was disheartening. Every sign he even attempted to imitate looked exactly like "stop". 

In the last few days, he's started sleeping all night, seems more engaged and happy, and more importantly, has begun signing again....imitation and spontaneous! I have no idea what was going on with him, but I feel like he's back and I am beyond blessed!