We're home! For awhile it looked like we might have to stay, as his heart rate and temperature suddenly climbed, but after much prayer, the Lord had mercy and he stabilized. They decided to let us come home. The other kids are still at my in-laws until tomorrow so that we might settle in peacefully. He's doing very well.
My opinion of Riley, our local children's hospital, went up considerably because of this visit. The staff in the heart center is phenomonal (with the exception of one very arrogant nurse practitioner). They went out of their way to make sure Eon (and his parents) were as comfortable as possible. They obviously love what they do and they are great at it. We are very grateful!
The Lord is teaching me much about faith, spooky hens, and child advocacy. I'm sure I'll share most of it in another post, but for now, I'm going to enjoy the comfort of my own bed.
Our youngest sons, Simeon (Eon) and Bogdan (Bo), have Down syndrome or Trisomy 21. This is their story.
Showing posts with label recovery. Show all posts
Showing posts with label recovery. Show all posts
Monday, June 15, 2009
Saturday, June 13, 2009
Out of ICU
Eon is doing great! He's been moved from ICU to the heart floor and there is talk that he could go home as early as Monday! He started the day looking miserable. I got here to relieve Shawn around 7:30 and he just looked pitiful. I asked Shawn if he'd been fussy and he said, "Only when he was awake." But, as the day progressed, they removed his chest tube, foley cath, and arterial line and he is starting to show us some smiles. Mostly he just eyes everyone suspiciously. His milk intake is good and he's tolerating it well, too. I finally got to hold him as we brought him to the 4th floor and that's the first time he really smiled, as well.
Praying for a good night, no infections, good pain control, and sleep for both of us.
Praying for a good night, no infections, good pain control, and sleep for both of us.
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