We're home! For awhile it looked like we might have to stay, as his heart rate and temperature suddenly climbed, but after much prayer, the Lord had mercy and he stabilized. They decided to let us come home. The other kids are still at my in-laws until tomorrow so that we might settle in peacefully. He's doing very well.
My opinion of Riley, our local children's hospital, went up considerably because of this visit. The staff in the heart center is phenomonal (with the exception of one very arrogant nurse practitioner). They went out of their way to make sure Eon (and his parents) were as comfortable as possible. They obviously love what they do and they are great at it. We are very grateful!
The Lord is teaching me much about faith, spooky hens, and child advocacy. I'm sure I'll share most of it in another post, but for now, I'm going to enjoy the comfort of my own bed.
Showing posts with label surgery. Show all posts
Showing posts with label surgery. Show all posts
Monday, June 15, 2009
Saturday, June 13, 2009
Out of ICU
Eon is doing great! He's been moved from ICU to the heart floor and there is talk that he could go home as early as Monday! He started the day looking miserable. I got here to relieve Shawn around 7:30 and he just looked pitiful. I asked Shawn if he'd been fussy and he said, "Only when he was awake." But, as the day progressed, they removed his chest tube, foley cath, and arterial line and he is starting to show us some smiles. Mostly he just eyes everyone suspiciously. His milk intake is good and he's tolerating it well, too. I finally got to hold him as we brought him to the 4th floor and that's the first time he really smiled, as well.
Praying for a good night, no infections, good pain control, and sleep for both of us.
Praying for a good night, no infections, good pain control, and sleep for both of us.
Saturday, June 6, 2009
We've had no apnea alarms since my last post! Yay! I did call the cardiologist's office and reported the bradycardia (low heart rate) to the nurse who didn't seem to care. Which is fine. If she's not concerned, niether am I.
Four of Eon's siblings spent the last week with their cousins at my sister, Tonya's house. According to her, they were amazingly obedient and wonderful (until the last day). Once they arrived home, all sense of obedience seemed to fly out the window. Why is that? It's like they had to work so hard at being good, they let it all hang out when they come home. We call it "re-entry" and it has been difficult at best.
Eon, however, seems energized at having them home. He is eager to show off his new skills for them, like batting at the hanging kitty on his swing or waving his "hallelujah hand" while sitting in his bouncy seat. Mostly, he just seems more awake and interactive. Apparently, we were boring him. I was actually concerned that he was sleeping so much, but I think he was just taking advantage of the quiet. I wish I would've joined him!
Surgery is Friday and I am starting to let worry creep in. I wish I had a better idea of what it entails and what I can expect for recovery. I guess I have to wait until pre-op on Thursday to get the details.
Four of Eon's siblings spent the last week with their cousins at my sister, Tonya's house. According to her, they were amazingly obedient and wonderful (until the last day). Once they arrived home, all sense of obedience seemed to fly out the window. Why is that? It's like they had to work so hard at being good, they let it all hang out when they come home. We call it "re-entry" and it has been difficult at best.
Eon, however, seems energized at having them home. He is eager to show off his new skills for them, like batting at the hanging kitty on his swing or waving his "hallelujah hand" while sitting in his bouncy seat. Mostly, he just seems more awake and interactive. Apparently, we were boring him. I was actually concerned that he was sleeping so much, but I think he was just taking advantage of the quiet. I wish I would've joined him!
Surgery is Friday and I am starting to let worry creep in. I wish I had a better idea of what it entails and what I can expect for recovery. I guess I have to wait until pre-op on Thursday to get the details.
Saturday, May 30, 2009
We have a surgery date!
Eon's surgery is scheduled for June 12. We go to Riley on the 11th for pre-op which will take 5-7 HOURS! We will not know until then what time his surgery will be. I am so glad we live close to the hospital. I can't wait to be on the other side of this! I'm doing very well and continue to have amazing peace about putting his life into another's hands, probably because I already have. He is not mine. His life belongs to the One who made him. I will fight for him, pray for him, love him, challenge him, disciple him, play with him, and provide him with every opportunity for a full life, but ultimately, I am not in control. Praise God - I am not in control!
We've had a busy weekend attending graduation open houses. Eon seems to enjoy being passed from person to person. He's a big hit with our friends and the friends of his siblings. Speaking of siblings, the middle four are staying with their Aunt Tonya for a week so we can get some projects completed around here. It is very quiet. I think Eon misses the commotion and bedlam as he seems a little fussier than usual. I think Aunt Tonya should be considered for sainthood. :)
We've had a busy weekend attending graduation open houses. Eon seems to enjoy being passed from person to person. He's a big hit with our friends and the friends of his siblings. Speaking of siblings, the middle four are staying with their Aunt Tonya for a week so we can get some projects completed around here. It is very quiet. I think Eon misses the commotion and bedlam as he seems a little fussier than usual. I think Aunt Tonya should be considered for sainthood. :)
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