Home...for now

Simeon was finally discharged from the hospital yesterday. We were so blessed to have a private room for most of his stay. We didn't realize how blessed until they had to move us into a double room a few hours before discharge. Oh my. We were even more excited to be released!

He had his nap study in the morning, but I was told it was to be in the afternoon so I let him sleep after his 6:00 a.m. feeding. Ugh. So he just dozed a little bit during the study and never got into the deep, scary sleep. Needless to say, they didn't find anything.

What they did find (that is not related to the apnea, apparently) is that he has a double aortic arch. It's a fairly rare congenital cardiac abnormality that basically means that his two aortas form a ring around his neck, compressing his trachea and esophagus. He is virtually asymptomatic at this time, but as he grows the compression can cause scary respiratory and swallowing issues. It is very good that they found it so early because the worse the symptoms before surgery, the longer the recovery time. So, we are waiting on the call to schedule his surgery for sometime in the next few weeks.

Cardiovascular surgery is a little frightening. Strangely, I have perfect peace about it. I believe that God was protecting our little guy when he woke me up to check on him the other night ,and I believe that he was also protecting him when he allowed the doc to find the DAA on his upper GI test. As much as I would like to be in control, I am not. Amazingly, there is a peace with that knowledge.

Cardiology

Today we went to see the cardiologist, after having Eon's echocardiogram repeated last week. He had one done shortly after birth which showed a moderate VSD and a small ASD (holes in the heart for all you non-medical folks). The cardiologist later downgraded the VSD to small.

We waited for quite a long time in the plain, boring exam room with only children's books to look at. When the cardiologist finally got to us, he was just as nice as I remembered him. Last time we saw him it was at the end of a very long and discouraging day at the Down syndrome clinic. He was our one bright spot.

Anyway, he told us that both holes are significantly smaller and he doesn't need to see Simeon for two years!!! At which time, he fully expects both of them to be completely closed.

God is good...all the time!