My third passion is to reduce the number of abortions based on Down syndrome. The current numbers stand at 90%. Ninety-percent of women, when shown by amnio or cvs to be carrying a baby with Down syndrome, choose abortion. Keeping in mind that there are many of us who, when faced with indicators of Ds, chose to forego further testing, it is still a staggering number.
I recently read someone's comment that those who choose testing are only those who would abort, anyway, however, I know that's not really accurate. I have read the stories of many, many women who swore going into the test that there was no way they would consider termination and yet, that's exactly what they did.
Fear mostly. Raw terror. Not having an actual baby to reassure them, they are terrified of the unknown. Most parents of kids with Ds that I have contact with propose that education and exposure are the answer. If we just show the world how wonderful our kids are, people will get it and the fear will go away. I'm sad to say that I don't buy that.
We are a society of convenience and ease. Our sole motivation is to make our lives easier. Easier is better in western civilization. Having a child with a "disability" is not considered easy and therefore, must be avoided.
Though not easier, our lives are better because of Eon. He is a joy and delight. I could repeat this until I was blue in the face, but most people will only take note of the extra appointments, his earlier heart surgery, and his developmental delays. They will rejoice with me that I consider myself blessed..... and be secretly glad that it's me and not them.
How can you possibly convince people that you really love having a child with Down syndrome without it sounding like you are just trying to make the best of a difficult situation?
I so wish I could see this as a simple education problem, but I can't because it's not....its a spiritual problem. People always see what they want to see. Therefore, they will see suffering where none is, they will see hardship when none exists, and they will not see joy where it is in abundance in order to justify their behavior and pacify their hearts, so that they can do what is easy and convenient.
There is one who blinds their eyes, who has come to steal, kill, and destroy. They are deceived and no amount of education will prevent their hearts from believing the lies they so readily embrace.
It is not just the unborn that suffer from the deception. I have read the stories and my heart also aches for the women who have chosen wrongly and now must face that choice every day. They are often overcome with grief and guilt. They will never be the same.
Senseless is the only word that comes to mind.
So what do I do with this passion of mine? I still educate and advocate every chance I get. But, I also pray, fervently, for those who are making the choice and for those who have already made it.